New Book: “Growing an In-Sync Child: Simple, Fun Activities To Help Every Child Develop, Learn and Grow”

Carol Kranowitz, author of the “The Out-of-Sync Child”  has just co-authored this new book with Joye Newman, a perceptual-motor therapist. Their new book, published in May 2010, is “Growing an In-Sync Child: Simple, Fun Activities to Help Every Child Develop, Learn and Grow.”   Carol states that “Joye and I are pleased with its reception so far and hope that many families will enjoy the fun, functional, flexible and fruitful activities we suggest.”

Product Description

A fresh and timely approach to understanding the profound impact of motor development on children of all ages and stages.

Based on the authors’ more than seventy combined years of professional success working with children of all abilities, Growing an In-Sync Child provides parents, teachers, and other professionals with the tools to give every child a head start and a leg up.

Because early motor development is one of the most important factors in a child’s physical, emotional, academic, and overall success, the In- Sync Program of sixty adaptable, easy, and fun activities will enhance your child’s development, in just minutes a day.

Discover how simple movements such as skipping, rolling, balancing, and jumping can make a world of difference for your child-differences that will last a lifetime.

Availabe on Amazon for $10.85.

Surgery a Success!

Yesterday the 16th of June, my Jacob had to have a long awaited surgery. I believe the medical term is an Electrophysiology Oblation for his heart.

He has been on heart medicines since he was about 3 months old that controlled his SVT (supraventricular tachycardia) layman’s terms “fast heart rate”. He was diagnosed with WPW (Wolff Parkinson White) which is a fast heart rate.

He has done pretty good with the medicine, but don’t get me wrong though there was several scary times that he was either rushed to the hospital or my husband or I would hang him upside or put ice on his face. Not fun things to do to your child, but the first lines of helping him not to go to the ER. There were several times that we were successful other times we weren’t. But his Pediatric Cardiologist was hesitant to keep him on this medicine for an extended period of time because it may cause an issue with the thyroid. So we have spoken in the past about this surgery, but Jacob had to get to a specific weight which made it safe for the surgery to be performed.

So yesterday we came to The Heart Institute at Hope Children’s Adocate Hospital in Oaklawn, IL to get it done.

I was very impressed as the nurse walked in with a Build A Bear box. Inside was the cutest, softest Kitty. It was given to Jacob through a donation from a little 13 year old girl, who had 3 open heart surgeries at the hospital and felt that every child should have a stuffed animal to hold to feel safe. My little guy just smiled and kissed his kitty, I was so emotionally touched by this little girls generosity and caring for other children. Here is a picture of Jacob with Kitty.

After all the questions were answered and papers signed to go ahead with the procedure, I walked him as far as I could to the surgery room and then a nurse took him. My husband and I got our coffee and soda for our long wait. It seemed to take forever, exactly 4 hours in the waiting room, watching everyone person that went by to see if it was the nurse or doctor.

Finally the phone rang at the waiting room desk with good news! The surgery was a success and he did wonderful. They told us that we would be able to see Jacob in about 45 minutes.

The doctor came out and told us that he was able to use get the entire cell, and he felt that Jacob shouldn’t have any more problems with SVT’s. So we will be keeping our fingers crossed, but you know they can never guarantee anything so we are optimistic there will not be any further surgery or medicines.

He took us back to see my little guy, and as expected he was freaking out. The nurses asked me to sit on the gurnee with him and just hold him to calm him down but also to keep his legs straight since they had pressure dressings on each legs from the trocars holes.

After about an hour they brought us over to our room to get settled in for the night. As the nurses did all their questions we just tried to keep him calm and to drink water and soup to get something in his belly.

He did well until the nurses would have to come in every 4 hours to monitor him. I know they have to do their job, but that gets exhausting because Jacob hates anyone touching him, listening to his heart etc. So it takes my husband, myself and a nurse to hold him down, so they can get what they need from a monitoring standpoint. Now doing this every 4 hours we are completely exhausted.

Well he finally ate, and went to bed so my husband went back to the hotel he was staying at near by because we had to bring our dog. So he took care of that baby while I stayed with Jacob and took care of him. We are a good team that way.

So I made my bed and got settled in and you guessed it shift change, monitoring time and a wrestle match. But I can’t complain because Jacob did wonderful through the night that the next morning we were ready to go home.

We got discharged and are heading home. I’m so thankful that God was watching over us and taking care of us for a successful surgery and a speedy discharge. It’s good to be heading home.!

No Bad Kids – Toddler Discipline Without Shame (9 Guidelines) | Janet Lansbury

No Bad Kids – Toddler Discipline Without Shame (9 Guidelines) | Janet Lansbury

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I have pondered this thought with regards to discipline for Jacob. In the article in the above link you can read some great guidelines when it comes to disciplining your toddler.

I am convinced that there is a real lack of respect for adults when it comes to disciplining children. I know when I was a child, if I was told to “go to my room”, I went. I did not want to deal with the wrath from my dad when he came home, so I just went. Nowadays, I just feel that children lack “respect for adults decisions”, so that’s why they don’t listen and test their independence.

Now don’t get me wrong I love to teach Jacob to be independent, but how do we teach them to “respect our decisions” when it comes to disciplining them. I don’t think I have figured that out yet.

I definately believe in positive discipline, but when you are exhausted, rushed or just don’t feel like fighting that goes right out the window. We pick and choose our battles and this causes inconsistency. I know because I am experiencing this.

My sister just brougt me this book: “Positive Discipline for Preschoolers” by Jane Neslen I am looking forward to reading this.

Would love to know your thoughts on how you discipline your toddler in a positive, productive way?

Springbreak Vacation – Jamaican Style

Well here is a snapshot of our springbreak at “Beaches” Negril. As you can see Elmo in our family picture, that’s because Beaches has partnered with Sesame Street to provide the all around family vacation.

We had a blast! This was one of the best family vacation we have had. Beaches did a great job including all members of our family no matter what the age.

As you can see by this picture of Jacob with Abby
he had his birthday party in Jamaica. You have never seen so many smiles on this kid. Every morning he woke up asking for Elmo or Cookie.

Every day they had a new set of activities to do. Here is Jacob and Amanda looking at the day’s activities to decide which ones they wanted to go to.

My stepdaughter Amanda who is 15, was able to do things with other kids her own age. She got certified to be a DJ at a party. She went to a DJ academy and made a cd, and got a certificate of completion. She did a great job on the cd.

In closing if you are looking for a very relaxing, but yet fun-filled if you choose to partake in the days activities vacation for the whole family this all-inclusive resort in Negril, Jamaica was a must see for all families.

Take it from us we loved it and plan to go back.

Press Release for Autism Awareness Month Book Giveway from Special Mompreneurs

Special Mompreneurs, my network group for mom entrepreneurs who have chosen to stay home and juggle running a business from home to care for their special needs child. Is proud to announce a book giveway that we are sponsoring in awareness of Autism Awareness month.

One new member who joins the group before April 23rd, their name will go into a drawing for this wonderful, must have book. Click title above to read the press release or check out Special Mompreneurs for more information.

Happy 4th Birthday My Precious Boy!

Today is my son’s 4th birthday. I cannot believe he is 4 already, where did the time go? I can remember like it was yesterday when we were in Naperville, IL celebrating his birth!

So on Saturday, we had his first “friends” birthday. It was perfect. I had invited 5 of his classmates, but only 2 were able to come since it’s Springbreak and the others were on vacation. But all-in-all it was just enough. Everyone had a great time. Even his teacher came.

It was really cute, because when we got to the birthday song, the 3 of them (Jacob, and his two friends) were singing “Happy Birthday … cha, cha, cha” it was so cute. I started laughing because I never heard Jacob do that before so you can see that was something special they do at their school.

So today when his dad and I sang to him this morning since today is his official birthday, we did the “cha, cha, cha”, and he just laughed.

He had a great birthday, and we are looking to another one next week when we are on springbreak in Jamaica. He has a birthday party scheduled with Elmo. So basically he had a Barney party and an Elmo party, we covered all his favorite characters.

"Communication on The Go"

I took my son to speech therapy today and the ST showed me a really neat, innovative tool that the schools in our district are starting to use to help children that are unable to communicate.

It’s a software that can be downloaded to your IPhone or IPod, the name of the software is Proloquo2Go.

Basically it shows picture/text and if you click on that button it will say the word. You can customize it to speak your child’s name, you can create sentences ex: “I want a drink of milk” and save them so they can just click on that sentence amd use it as often as needed.

It’s quite a fascinating piece of software, and for someone who has an Iphone I think the program is so easy to use, but most of all it’s portable, they can carry the Iphone or Ipod with them to school, play dates, etc.

For parents of children that are unable to communicate or have a hard time communicating because of speech issues, this should provide a measure of comfort knowing that your child will be understood.

IEP Meeting

Well today I had to meet with our Special Education team to discuss Jacob’s IEP. I’d like to give you alittle backgroud so you will understand my comment when I say “I dont’ really look forward to these meetings”, and the reason I say that is because our first meeting did not go well.

Before Jacob was going to transition into the school district special education program, I did alot of research on the preschools in the area, visited 3 and asked alot of questions of the therapists that came to my home when Jacob was in early intervention.

I decided that I did not want Jacob to go to the public preschool that apparently I was being pretty much being forced to have him go to. I wanted him in a loving environment so I decided on a preschool at a local church (which was not in the public program for special education). So when we had our transition meeting I told the Coordinator of the Special Education program of our school district that Jacob will not be going to the public school preschool. Yes I want him mainstreamed, but I did not feel that preschool would offer him anything. She said she understood and agreed that it would be fine.

Well when we had our first meeting, which was about 2 hours long, she tried to blindside us by having us sign the paperwork stating that Jacob would go two days at the public school and two days at the private preschool.

My loving husband who normally is really good at these meetings, didn’t realize what was happening and I just sat there dumbfounded that she this Director was trying to pull a fast one over on us.

My husband signed the paperwork and when I got home I said do you know what you sigend you signed for Jacob to go to school 4 days a week, at two different schools. He said no that’s not what they said, I said “read the paperwork”. Well he was furious that this lady did not respect our wishes after we had her at our house and she confirmed that Jacob did not have to go to the public school in order for him to receive services. So I was furious and thought well if this is how the lady wants to play the game, she’s messing with the wrong people.

After many conversations with a variety of people, I requested another meeting to change it to what we originally discussed and requested her boss be there, so he understood what she was pulling. We wondered how many other people did she do this to.

Hence the reason for me not liking these meetings.

However, this meeting went very well. All of the therapists and Jacob’s preschool teacher were very impressed with how “smart” Jacob is, and how well he has adapted to his school and how fast he is coming along. He’s doing “wonderful” his preschool said. She mentioned the Christmas pagaent, and how she got so emotional when she saw Jacob who was in the front row, right in the middle standing there like a little boy participating and singing all the songs. As she said, “I was looking around at all the kids, and then I focused on Jacob and he just glowed like a shining star and she had to fight back the tears.” Here is a few pictures of that event:

Jacob and his teachers:

So when the meeting was over, the Coordinator asked if I wanted to sign the paperwork then or take it home, of course my answer was “I will take it home and sign it”.

When we walked out Jacob’s preschool teacher said “that went well, I think she knows not to mess with you now”. I hate to sound like a %*$#@, you have to be strong for your child as you are their biggest advocate.

So at the end of the day I was pleased at how well the meeting went.

Happy Cleaning Day!

Well does this picture explain the title of the post? My little guy was so cute today, he just loves when the cleaning people come. He runs and gets his vaccum so that he can help them clean the house.

I love it, I think it’s great that he has such a desire to clean – I hope this lovely trait will stick with him as he gets older.

The cleaners are wonderful, they are so loving and patient with him and just let him stay by them while they clean. Today the owner thought it was so cute because he pulled the shoes out from under my dresser so she could clean. Then he put them back and started to count with her. Hey it’s a learning experience all the way around.

Now of course I dont’ let him stay by them all the time, because I know they came to do a task and not babysit my child. However, it’s nice that for a few minutes I know my child is being watched so I can put a few things away or do a few things around the house.

I love the second Tuesday of every month.

Please Vote for the National Down Syndrome Congress Campaign

I wanted to ask for a favor. The National Down Syndrome Congress is creating a marketing campaign “More Alike than Different”. I have entered my son in for a poster.

I would love it if you could take a minute to vote for him, his poster is #63. You can vote for 2 other posters also, because you can’t vote for Jacob’s poster 3 times or you won’t be counted.

Also you can only vote once. Thanks for your support.

Click here Jacob poster #63